Touch Medical Media are delighted to announce a new partnership with National Organization for Rare Disorders (NORD)
NORD, is a patient advocacy organization dedicated to individuals with rare diseases and the organizations that serve them. NORD, along with more than 300 patient organization members, is committed to the identification, treatment, and cure of rare disorders through programs of education, advocacy, research, and patient services.
For more than 30 years, NORD has been providing services for patients and their families, rare disease patient organizations, medical professionals, and those seeking to develop new diagnostics and treatments. NORD are here to support every member of the rare disease community with services focused on one ultimate goal: to improve the lives of individuals and families affected by rare diseases. https://rarediseases.org/
touchCARDIO
Wolfgang Linke, ESC 2021 – Key Pathomechanisms of TTNtv-dilated Cardiomyopathy
touchENDOCRINOLOGY
Current medical therapies available for craniopharyngiomas
Ferdy van Geest, ETA 2021: Efficacy of T3 analogue Triac for MCT8 deficiency
touchIMMUNOLOGY
Dr Emanuel Della Torre on novel therapeutic approaches
Bob Geng, AAAAI 2021: Immunoglobulin Replacement Therapy
touchINFECTIOUS DISEASES
touchNEUROLOGY
Bernd Schwahn – First-in-class treatment approach on Molybdenum cofactor deficiency (MoCD)
Renato Mantegazza – challenges that arise in treating myasthenia gravis
touchONCOLOGY
Pegcetacoplan in Paroxysmal Nocturnal Haemoglobinuria
touchOPHTHALMOLOGY
Paediatric Vernal Keratoconjunctivitis – The VEKTIS Study
touchRESPIRATORY
Watch a short interview with Dr Vincent Cottin on challenges and latest research in IPF
Recent Advances in Primary Ciliary Dyskinesia: From Diagnosis to Treatment
